September 13, 2010
August 25, 2010
a plea for a girl who has just a few years left to live - and is just 20
Rebecca is 20 - Lafora's Disease is VERY rare takes children in their early to mid 20's and there is no cure. She is a high school friend's relative who was just diagnosed with this disease. Him and his family are all stunned to find this out. We think our life is so difficult, we look at our family and struggle--but there are worse situations and today I am thanking God my son has just mental illness and not a disease that will take him in a few years.
Lafora Disease website featuring Becky
http://www.chelseashope.org/rebecca_cotton.php
Becky's Facebook page wanting to find a cure
http://www.facebook.com/BlessedMom1305?ref=profile#!/pages/Beckys-Dream-Cure-for-Lafora-Disease/142258165813053?ref=mf
Lafora Disease website featuring Becky
http://www.chelseashope.org/rebecca_cotton.php
Becky's Facebook page wanting to find a cure
http://www.facebook.com/BlessedMom1305?ref=profile#!/pages/Beckys-Dream-Cure-for-Lafora-Disease/142258165813053?ref=mf
May 5, 2010
I'm sorry, what?
While I understand Strength Based Therapy I do not need to take my son to a "tea party" each week. I need the Therapist to address the messy stuff. She told me that my hostile approach to my son yields no results. Since when did Parental Authority become viewed as hostility? (I'm sorry, what?) Does she need to be shown the true definition of hostile?
April 1, 2010
A poem written by Pauline Branton about her special daughter Megan
I simply had to share this, posted by Pauline Branton
You weren't like other children,
And God was well aware,
You'd need a caring family,
With love enough to share
And so He sent you to us,
And much to our surprise,
You haven't been a challenge
But a blessing in disguise.
Your winning smiles and laughter,
The pleasures you impart
Far outweigh your special needs
And melt the coldest... heart.
We're proud that we've been chosen,
To help you learn and grow,
The joy that you have brought us
Is more than you can know
A precious gift from Heaven
A treasure from above
A child who's taught us many things,
But most of all- "Real Love"
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